She appeared in an episode of Red Band Society and in the documentary series My Last Days. She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents future if it didnt go well. "[12] She died on September 2, 2018, at UC San Diego Thornton Pavilion. Here are some ways. Her foundation said she had died peacefully, surrounded by family. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. Your email address will not be published. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. She joked that the squats she was doing, upon doctor's orders, would help get her more than lungs. So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. Im just really overwhelmingly grateful for all of this. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. As a TEDx speaker, she gave motivational speeches at numerous conferences worldwide, and as a YouTube star, she around 250,000 subscribers. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to theCystic Fibrosis Foundation. The social media sensation died Sunday, a week after she suffered a stroke following surgery for a double lung . "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. Claires remarkable family were so happy for the other families that were now getting the calls that the organ they had long been waiting for was now available for transplant. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. Hap Moran Cause of Death, Age of Death, and Other Facts! A self-described goofball, she usually engaged people with humor and optimism. She listened to the risks and the long list of side effects and emerged unfazed. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. Cystic fibrosis is a genetic condition with no known cure. But not long after the successful surgery, hope turned to fear. Despite emergency surgeries, and what her mother described as Herculean efforts to try to save her, the daughter she knew was gone. By mid-August, she was back on and feeling ready. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. [9], The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness. Claire Lucia Wineland (April 10, 1997 September 2, 2018) was an American activist, author, speaker and social media personality. She underwent more than 30 surgeries during her lifetime. A quarter of Claires life was spent in the hospital. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited cures, telling her to eat more pineapple or that a mushroom cleanse would take care of everything. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. Cystic fibrosis did not define Claire Wineland. Eldridge R. Johnson Cause of Death, Age of Death, and Other Facts! The BBC is not responsible for the content of external sites. She passed away peacefully, with her parents by her side. Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. She has a younger sister namedEllie Wineland. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. Living a life we can be proud of is something we can control. On Monday afternoon, her mother received word that Claire had already made a difference. Claires Place Foundation offers two kinds of support. Im grateful for my own head and for all the weird things in it. I would like to acknowledge Claire Wineland who passed away last night. Read about our approach to external linking. At one point, Claire looked at her mom and said, "After you die, you're closer to everyone you love because you're part of everything," Yeager remembered.These words were a gift, a reminder that Claire would remain with her always, even after she was gone. Magnolia Shorty Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! The 'My Last Days' Subject Is Helping Others Live Their Best Lives", "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle', "What I - and the World - Learned from Claire Winland's Passing", "AARC Congress Announces Claire Wineland As Keynote Speaker", "breathless choir Claire's Place Foundation", "I stopped doing the Clairity Project because I got screwed over", "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant", "Meet the 2015 Teen Choice Pro-Social Honorees", "Nonprofit & Corporate Citizenship Awards 2014", Claire's Place Foundation: Official Website, https://en.wikipedia.org/w/index.php?title=Claire_Wineland&oldid=1133052069, 21st-century American non-fiction writers, Short description is different from Wikidata, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 12 January 2023, at 02:13. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. "It's not for me and never has been. It's not about how you feel second to second," she said. She has a younger sister, Elanore Nordquist. ", Claire Wineland, reflecting on her outlook on life. She passed away peacefully, with her parents by her side. She was 21. Shed travel, answer calls for speaking engagements and put energy into her foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. It's a reality of living with cystic fibrosis she's come to accept. "Death is Inevitable. Shed work on a book promising it wouldnt be another happy sick person book and appreciate the small things like swims in the ocean for as long as she was able. My parents are divorced. She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. It took having a fair amount of relationships and casual sex before I realized that I wasnt the empty smiling shell of a girl I saw reflected back in pictures. She wasnt done contributing. I'm grateful for the chance to keep being a person," she said. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". Yeager posted a video of herself doing a happy dance with friends in the waiting room.But not long after the successful surgery, hope turned to fear. She has a younger sister named Ellie. UC San Diego Health, San Diego, California, United States. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. She was also a speaker for the motivational TEDx Talks.. She did. She sat in an educational meeting at UC San Diego Health's transplant center and diligently took notes.Revealed on her left ankle was a tattoo: the thumbs-up "Don't Panic" logo from "The Hitchhiker's Guide to the Galaxy. It hurts everything inside of me to make this video, she said into the camera. Claire Wineland (19972018), inspiring speaker lived with cystic fibrosis, Jay Briscoe (19842023), Ring of Honor wrestler, C.J. Save my name, email, and website in this browser for the next time I comment. [3] At age 13, her lungs failed and she was placed in a medically-induced coma. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. Despite emergency surgeries, and what her mother described as "Herculean efforts" to try to save her, the daughter she knew was gone. Her organs were made available for transplant. She was 21. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. Claire Wineland 1997 - 2018 BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. pic.twitter.com/BsTEFmquR7. Claire Wineland (1997-2018), inspiring speaker lived with cystic fibrosis. In April 2010, after a routine surgery, Wineland had an infection which led to lung failure. She loved every moment of her life, even those days when she was in hospital. Obituaries Section. I have found a new hero, her name is Claire, I am a US Marine and a Retired Police Officer, and just recently viewed on of Claires Videos on U-Tube, I became instantly in love with her, as Im sure many have. Senior producer, Legacy.com. Shortly after the surgery, Wineland suffered a stroke due to a blood clot which "cut off blood flow to the right side of her brain. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Claire Wineland's death was caused by stroke. She took great care to decorate her hospital room so it felt and looked like home.Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care.Her father credits Claire with teaching him "to not be afraid of what hasn't happened yet" and to learn to "love what is. Wineland was moved by the communitys support when she was in coma. So grateful for everything this month. Submit an Obituary. "It hurts everything inside of me to make this video," she said into the camera. She had a popular YouTube channel, gave [2] [3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). Notable quote: I do these talks to make a point. Its a GO!! appreciated. "It's a GO!!!" Wineland enjoyed performing on stage from a young age. By asking for it, she said, she could relax and get in the headspace for whatever would come next.Before signing off, Claire implored viewers to do one thing. She was a wonderful person and the world . "They saw her into this world for her first breath and were with her for her last," Laura McHolm, the board chair for Claire's foundation, wrote in a Facebook post.https://www.facebook.com/clairesplace1/photos/a.201156033256783/1960745163964519/?type=3&theaterLess than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to theUnited Network for Organ Sharing, which operates the nation's organ transplant system.Claire, who understood the importance of organ donation, was a donor herself. 2:33 PM EDT, Tue September 4, 2018. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. https://www.thefamouspeople.com/profiles/claire-wineland-42459.php. She needed financial help. She was 21. The nine-hour surgery went well, and her mother reported that the lungs were working great. Wineland hosted many videos for the channel. The Times-Picayune Homepage. "I've struggled more with guys, depression drugs, family and career than I ever have with my illness. On September 2, 2018, she passed away peacefully, at the US San Diego Thornton Pavilion. Her organs were donated to needy patients. Who was Ukrainian minister Denys Monastyrsky? Rest in peace dearest Claire As most of you know, September 2, 2018 at 6:00pm, Claire Wineland passed away. Required fields are marked *. A supportive space for people & families affected by Cystic Fibrosis. View All 253 Entries. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare. Support Families offers personalized support and assistance in areas such as treatment, care processes and emotional support from other parent volunteers. Snap Greene is the alter-ego of 13 year old Claire Wineland. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. Despite facing a life-threatening disease, she always remained positive, smiling and motivated people with her speeches and activities. Swami Vivekananda Cause of Death, Age of Death, and Other Facts! On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. According to doctors, she had a survival chance of 1%. She wasn't done contributing. A Warner Bros. Biography - A Short Wiki Entrepreneur and founder of the award-winning non-profit organization Claire's Place Foundation, which provides support to families living with Cystic Fibrosis. I am also, like thousands of other people living on this planet, sick. Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughters aura and her ability to lift up those around her. After the death of Claire Wineland, her family intends to carry on the noble work started by her. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. (Bio, Age, Family, and Death) Claire Wineland was an author and activist who was born in Austin, Texas, on 10th April 1997, to Melissa Yeager and John Wineland. She revealed that The Clairity Project was not under her control. Soulja Slim Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Im grateful for my own head and for all the weird things in it. Support Families program offers assistance in treatment, and emotional support from volunteers. The medical team that tended to her became family. Cystic fibrosis is a genetic condition with no known cure. [5] She enjoyed performing from a young age and appeared in The Music Man at age four. Find an Obituary . She had a popular YouTube channel, gave Claires gift is huge, I want your family to know that your daughter is a hero.. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Wineland miraculously came back to life. When I was younger and obsessed with becoming an artist, the hospital was my New York loft apartment. Due to no formal contracts over ownership of the project being in place, the company continued to profit from the project. She knew that the call could come at any minute, and on August 26, it did. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. . She has gone on to become an advocate for others suffering from the disease she has had since birth. What happened in the Ukraine helicopter crash? Life isnt just about being happy. For more information and make a donation, please visit www.clairesplacefoundation.org.Footage courtesy of TV4 Entertainment Inc She was of the mind that she would leave this world with the body she came in with. "She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents' future if it didn't go well. Her organs were made available for transplant. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. Yeager posted a video of herself doing a happy dance with friends in the waiting room. Claire Wineland died at age 21, too young. Wineland stated she did not have the energy or the money to take the case to court. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. The moment you realize it's not about avoiding suffering; it's about making something from your suffering, you're incredibly freed. She has a younger sister named Ellie Wineland. She grew up loving to perform and landed her first role inThe Music Manat 4 years old. The Plain Dealer. George Steinbrenner Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! [11], On August 26, 2018, Wineland underwent a double lung transplant. Its not about how you feel second to second, she said. 2023 BBC. [7], Wineland was chosen to be the keynote speaker at AARC Congress, the 63rd International Respiratory Convention and Exhibition. Sign up here to get The Results Are In with Dr. Sanjay Gupta every Tuesday from the CNN Health team. Claires parents learned to trust their independent and strong-willed daughter. Menu. "Claire's gift is huge, I want your family to know that your daughter is a hero. Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'. She was 21 years old. Im grateful for all the people who donated to help me get through transplant. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. "See y'all on [the] other side. 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She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. The cause of death was a massive. Claire was an activist, author, TEDx Speaker, social media. Last night at 6 pm- my dear friend and little soul sister -Claire took her last. I'm not an innocent and I'm not a child," she wrote in March. Im not an innocent and Im not a child. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. It was a welcome, albeit terrifying, development for those who loved her.To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. Then came the call that offered new life. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. Claire Wineland Popularity Most Popular #8596 Born on April 10 #35 Entrepreneur #31 She'd travel, answer calls for speaking engagements and put energy intoher foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. This time, she was raw and allowed herself to cry. A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. She once escaped from the hospital so she could attend a Bernie Sanders rally. Dedicated daily to memorializing notable personalities. A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. She never emerged from her medically induced coma. @larissaperoux We some cheese balls just cheesing it up. Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. I had to be honest, she once explained. Read about our approach to external linking. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). "I didn't realize how much I didn't expect to live this long. Go enjoy it, cause there are people fighting like hell for it.. These words were a gift, a reminder that Claire would remain with her always, even after she was gone. Claire Wineland Dies at 21 After Receiving Lung Transplant Inside Edition 11.4M subscribers Subscribe 69K 2.8M views 4 years ago #InsideEdition YouTuber Claire Wineland, who chronicled. YouTube star Claire Wineland has died a week after having a lung transplant. Harris (19912023), American Idol contestant, Keenan Cahill (19952022), YouTube celebrity lip syncer, Lupe Serrano (19302023), ballerina who danced with Nureyev, Joseph Jo Mersa Marley (19912022), reggae musician and grandson of Bob Marley. The family received immense support from friends, and community. I would like to acknowledge Claire Wineland who passed away last night. Associated With She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. Im grateful for the chance to keep being a person. The Plain Dealer Homepage. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. Some people worried that shed waited too long and wouldnt be given the chance at continued life. So grateful for everything this month. [2][3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). Find an Obituary. Direct quote published by online women's magazine Glamour three days after her 2018 passing. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. pic.twitter.com/BsTEFmquR7. Claire was an activist, author, TEDx Speaker, social media star and received numerous awards. The BBC is not responsible for the content of external sites. What if they poured everything into her transplant, and she didn't make it or was not able to work again, she explained later. Despite suffering from a critical illness, she maintained a positive attitude to life. She joked that the squats she was doing, upon doctors orders, would help get her more than lungs. Last night at 6:00pm, Claire Wineland our inspirational founder passed away. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed. "She listened to the risks and the long list of side effects and emerged unfazed. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. I have step parents that are fabulous. A double-lung transplant, when successful, can add years to a patients life. The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. real family is great. Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. Im grateful for all the people who donated to help me get through transplant. Is there someone you miss whose memory should be honored? Before signing off, Claire implored viewers to do one thing. Music was her biggest stressbuster and was part of Philips Breathless Choir as a solo artist. The Foundation has funded more than 26 families till now. Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. Claire's Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. She was a voracious reader and wrote books like- Every Breath I Take, and Surviving and Thriving with Cystic Fibrosis. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. She took great care to decorate her hospital room so it felt and looked like home. There is no passionate rant to be had here I am just happy and thought I would let you all know. "Go enjoy it, 'cause there are people fighting like hell for it.". When it came to her care, she knew her body best what worked for her, what didnt and how far she was willing to go. They saw her into this world for her first breath and were with her for her last, Laura McHolm, the board chair for Claires foundation, wrote in a Facebook post. Wineland uploaded videos in her personal vlog. She was a Fox Teen Choice Award honoree in 2015[14] and received the Gloria Barron Prize for Young Heroes[3]and Los Angeles Business Journal's Small Nonprofit of the Year Award in 2014.[15]. Her mother, Melissa Nordquist Yeager, and father, John Wineland, separated, when she was three years old. Menu. She'd also get a butt.She knew that the call could come at any minute, and on August 26, it did. She had a younger sister named, Ellie. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare.The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. 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